uabrc / uabrc/uabrc.github.io

Security Example: How do I migrate PHI data out of REDCap?

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style: article/section 📝 system: data-mgmt 🗃️ system: security 🔐
Dominant language
Python
Stars
24
Forks
15
Avg merge
10d 3h
Merged PRs (30d)
1

Description

What would you like to see added?

The following comes from a response to a specific request, and will need rework to fit our documentation formats. Each part could become a macro (or set of macros) and reused in other examples.

Investigators (Project Administrators) have the capability and authority to export data from REDCap in identified or de-identified formats at any time, provided the data remains in an appropriately secure environment.

Data management terms are governed via the approved IRP protocol used to collect the data. An amendment to the protocol may be required to migrate the data to another computing or storage platform.

If you are looking to establish a legal Data Use Agreement between UAB and another institution or corporate entity, please reach out to the Office of Sponsored Programs. They provide information about how to do that here: https://www.uab.edu/research/home/osp-federal-contracts/fc-other/data-use-agreements

Contributor guide

No contributing guide indexed for this repository

First steps

  1. Read the whole issue, then the project's contributing guide.
  2. Comment on the issue to say you are picking it up — it saves two people doing the same work.
  3. Fork the repository and make your change on a branch.
  4. Open a pull request that references the issue number.

Research direction

Review the repository's documentation formats and existing macro or example patterns first; no file or test is named in the issue. Rework the quoted REDCap guidance into the project's format, covering identified or de-identified exports, protocol amendments, and Data Use Agreements, while preserving the supplied Office of Sponsored Programs link.

Written by the indexing model from the issue text.

Assessment

Domain
documentation
Issue type
Documentation
Difficulty
3/5
Estimated time
1-2 days
Activity status
Stale
Clarity
Mostly clear
Newbie friendliness
38/100

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